Yesterday I read a very exciting piece of news about a group of international scientists being able to edit DNA in a human embryo to fix a disease caused by a defect gene.
This is super exciting news, and could pave the way to treating many diseases like mine. There is a bias in the medical research community to only work on hot topics. Rare, non-deadly diseases like mine go with no attention. There is little incentive to help such a small number of people who are not dying, regardless of suffering from hundreds of fractures in their lifetime and the impact on the life of those around them.
Finding such generic solutions will save many lives, and improve even more. I see some voices against it, out of fear of abusing it to alter humans, but if we can alter genes to get more healthy, smarter, and stronger humans, why not?